My Story

FTD-robbing the young

Written by Faye

You get to you 50's and start planning you life, the kids are grown and finally time for yourselves! Then a doctor gives you a diagnosis that robs you of hope and forward planning, these were to be the best years of our lives, travel, less work, enjoying being grandparents, that is now gone. You read everything you can because they are wrong ...or so you think....you get angry, go into denial then slowly the reality sets in. Life as we planned it will never be the same, we have chosen the path of clinical trails, travelling interstate to see specialists, we know it is too late for us, but maybe just maybe they will find something that will help others later. What I miss most is my friend, my lover my companion...the man i married, the most gentle of men, now a grumpy, demanding person who is in denial that he is suffering FTD. It suxs!!!! I miss the conversations, the planning of our future, the dreams we had for the next 20-30 years, and live with an emptiness and sorrow that fills my every day.......I miss my beloved husband. the kids find it hard to accept that some-one with 2 uni degrees can not read a paper or comphrehend what they are saying they walk on egg shells, and are constantlly changing the subject if conversations come up in case they say something their father will interupt the wrongway............it is a lonely journey