FTD- Our journey begins
A page in the diary "the carer got sick - no help for them"
Written by Faye Sunday, 26 April 2009 00:53
Feb 2nd 2008 is the day that will be etched in my brain forever. This was the day they told us my beloved 56 year old hubby had FTD. i sat in the specialists office looking at him as if he was a fool, didn't he know my hubby was aprofessional person with 2 University degrees, what did he know a few, tests, a scan, MRI and SPECT test......they were wrong. That is denial - stage one - the I got angry, so i researched and researched, and surfed the net, looking for trails, hoping to find out they had made a mistake. Hubby on the other hand seen oblivious to the fact that his brain is shrinking, is speech was hard to understand, then along come ARICEPT - the drug which gave me hope, it really just bought us a bit more time, the anger is sloly turning into acceptance. With acceptance comes the telling close friends and family members only to see them abandon us. So we go into the closet tell any-one who notices hubby is not quite right he has a brain tumor and sympathy is given. Then you get angry again at the stigma attached to Dementias, mental illness is treatable and curable, some brain tumors are treatable and curable - Dementia is not treatable, curable and is not going to get any better........So now our journey to acceptance begins, ........
Faye