Embarrassment and Feelings of Guilt

Dementia, is a disease that provokes many feelings. In the past, in particular, people who had dementia were poorly understood by those around them. Consequently there are many myths and misconceptions that need to be dealt with. It is not uncommon for the person with dementia to refer to him or herself as "stupid" and they may have a very negative view of themselves. Remember, dementia is part of an illness; it is nothing to be ashamed of.

Still, feelings of embarrassment - and guilt - can easily surface. It can be embarrassing when you cannot remember what just happened, when you do things the wrong way, or when you cannot remember basic social etiquette. Your pride and self-esteem may feel shaken. That can lead to isolation and withdrawal from social activities.

At the same time, you may feel guilty because you cannot perform the same tasks as in the past and this means you rely more on your family  as carers. It helps to talk about these painful experiences; it may be especially helpful to talk to others who are also living with dementia.

• Accept your feelings of embarrassment and guilt and know where they are coming from.
• You cannot avoid the feelings, but you can try to understand them and avoid isolating yourself.