Care

Even though you are the one living with dementia, remember that it also affects your loved ones. Spouses in particular are affected. Your spouse is the person who provides you with the majority of help and support in everyday life. It is very demanding for both of you to live with the disease and that is why you have to talk about the changes caused by your new life, e.g. about new tasks and responsibilities. Children will also be involved. Accept their help.

Your spouse will take on an increasing number of tasks. This will affect your relationship. The roles that you have had for many years will change and this needs to be addressed. If your spouses care becomes too overwhelming, you may feel helpless and incapable of managing your life and you may need to communicate this to them. You can say no to help. While you are able to express your needs, try to keep communication open. Your spouse may not know exactly what you need and may also feel confused, helpless and angry.

Care is based on love, accept it and return it by showing your appreciation and affection. You both have to make a big effort in order to maintain your relationship, although this is true for any relationship, one which is experiencing stress and change is even more vulnerable.

• Care for your spouse and your family.
• Show your affection.
• Keep communication open.