Fronto Temporal Dementia
A page in the diary ""
Written by kate 6. Apr 2008 03:52 PM
Hi
Thanks to all the people who have written diaries and comments. Reading through them makes me realise that others are struggling with the same kinds of things.
My mother has Fronto Temporal Dementia and sadly she went into permanent care in January of this year.
I realise when reading that others struggle with guilt and with the grief and loss of knowing and caring for someone with dementia.
-I read how other people were dealing with their loved one packing up all their things ready to go home although they will never go home again.
-I read how people visit someone they care about in a place they don't want to be.
-I was relieved to see that I'm not the only one who (mistakenly) thought much of the trouble would be over when the wrench of permanent care was over. (There there can be a whole new set of things to worry about).
I worry about my mum. I feel guilty. I miss her even though she is there.
Twice a week I visit her. I take her for a long walk along a creek. She doesn't talk. She finds sticks for my dog and I throw them in the creek and the dog chases and swims after them. It is a simple and pleasurable thing. We enjoy it.
It's a good thing to read the stories here. They are not the whole story. But they are an important way of making me and others feel less alone.
Take care everyone.
It's a sad, strange and beautiful world.
Thanks to you all.